26 June 2026 – GARDEN Webinar
- 09:00Welcome & Opening Remarks. Overview of global SCD burden and objectives of the webinar
- First session: Global Barriers to Early Diagnosis of SCD
- 09:15Bridging the Access Gap for Comprehensive Sickle Cell Disease Management Across Sub-Saharan Africa: Learnings for Other Global Health Interventions?L. Tshilolo
- 09:30Neonatal screening for SCD in Italy: Low Cost and Reproducible Program in an Area of Immigration of High Risk PopulationD. Venturelli
- 09:45Sickle cell disease in Germany. Results from a national registry: which are the unmet needs?S. Lobitz
- Second session: Innovative Models of Comprehensive Care
- 10:00Comprehensive care management in pediatrics age of SCDR. Colombatti
- 10:15Transition from pediatric to adult careC. Minniti
- 10:30Comprehensive approach for SCD care centersJ. Telfer
- 10:45After two decades of hydroxyurea: leukemic risk in sickle cell disease assessed by integrated marrow morphology, cytogenetics and genomicsA. Maggio
- 11:00Break
- Third session: New Therapeutic Strategies: From Disease-Modifying Agents to Curative Approaches
- 11:15Current and innovative treatments approach management of SCD in FranceM. De Montalembert
- 11:35Sickle Cell Disease management in UK: impact of Gene Editing treatmentD. Rees
- 11:55New insights on the hematopoiesis disorders in SCDL. De Franceschi
- Fourth session: Accessibility, HTA and Sustainability of SCD Treatments
- 12:15Discussion on actionable recommendations for 2027. Speakers: Representatives of Regulatory Agencies, Representatives of low-resource countries, Representatives of the Project Italy-Tunisia ETIC, Patient Association Representative, Nurse Specialist, Psychologist
- 13:15Closing Remarks & Action Points. Summary of key messages. Proposal for GARDEN SCD Position Paper. Future collaborative initiatives